ACE Kids act

UPDATE: Support the ACE Kids Act of 2015 for Children with Complex Medical Conditions

In January 2015, a bipartisan group of U.S. Senators and Representatives introduced the Advancing Care for Exceptional Kids Act of 2015 (ACE Kids Act), S. 298 and H.R. 546. If passed the Act will improve Medicaid care for the children with complex medical conditions. The legistation currently has 136 co-sponsors in the House of Representatives and 19 co-sponsors in the Senate. The bill has been referred to committees in both the House and Senate, but it has not progressed further. To move the legistlation forward for a vote, I encourage you to contact your Congressional Representative and the Texas Senators to express your support for this bill.

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Help support the ACE Kids Act to promote the medical home concept for medically complex children on Medicaid

The Advancing Care for Exceptional Kids (ACE) Act was first introduced in the House in June 2014 by Joe Barton (R-Texas) and Kathy Castor (D-Fla) to improve care for children with complex medical needs on Medicaid. Recently, it has been introduced to the Senate on January 29th, 2015 and re-introduced in the House on January 27th, 2015 with bipartisan support. These children have multiple diagnoses and often require multiple specialists which is why we need to support this legislation so that they can have a place to call their medical home.

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Exceptional Kids Require Exceptional Care

Right now there are roughly 3 million children in the U.S. with complex medical conditions. Two-thirds of these children rely on Medicaid to access. These children represent 6% of kids accessing medicare but account for 40% of Medicaid costs for kids. This population is growing as medical advances allow kids with previously fatal diseases or conditions to live and thrive into adulthood. (more…)