In January 2015, a bipartisan group of U.S. Senators and Representatives introduced the Advancing Care for Exceptional Kids Act of 2015 (ACE Kids Act), S. 298 and H.R. 546. If passed the Act will improve Medicaid care for the children with complex medical conditions. The legistation currently has 136 co-sponsors in the House of Representatives and 19 co-sponsors in the Senate. The bill has been referred to committees in both the House and Senate, but it has not progressed further. To move the legistlation forward for a vote, I encourage you to contact your Congressional Representative and the Texas Senators to express your support for this bill.
Right now there are roughly 3 million children in the U.S. with complex medical conditions. Two-thirds of these children rely on Medicaid to access. These children represent 6% of kids accessing medicare but account for 40% of Medicaid costs for kids. This population is growing as medical advances allow kids with previously fatal diseases or conditions to live and thrive into adulthood. (more…)