Right now there are roughly 3 million children in the U.S. with complex medical conditions. Two-thirds of these children rely on Medicaid to access. These children represent 6% of kids accessing medicare but account for 40% of Medicaid costs for kids. This population is growing as medical advances allow kids with previously fatal diseases or conditions to live and thrive into adulthood. (more…)
The Advancing Care for Exceptional Kids (ACE) Act was first introduced in the House in June 2014 by Joe Barton (R-Texas) and Kathy Castor (D-Fla) to improve care for children with complex medical needs on Medicaid. Recently, it has been introduced to the Senate on January 29th, 2015 and re-introduced in the House on January 27th, 2015 with bipartisan support. These children have multiple diagnoses and often require multiple specialists which is why we need to support this legislation so that they can have a place to call their medical home.